Invisible disabilities

What is an “invisible disability”?

Under the Equality Act 2010, a “disability” is any “physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities”.

An invisible disability means that this ‘impairment’ is not easily seen by the casual observer – the person who has the disability may indeed look ‘well’ even if they are not.


What are some examples?

Mental illnesses, chronic pain conditions, vertigo, hypermobility disorders and neurological issues including but not limited to CFS/ME and fibromyalgia are a few examples of invisible illnesses that can have symptoms which are disabling.  Any of these can make the person eligible for a Blue Badge or require the use of mobility aids, but unfortunately the ‘invisible’ nature of these conditions means that such people are inappropriately challenged when using them.  Assuming someone is “fine” because they do not have a visible impairment is an example of ableism.


What should I know about invisible disabilities, and how can I help my friend who is disabled in this way?

Some invisible disabilities, just like visible ones, can be ‘fluctuating conditions’.  This means that symptoms can be much worse or much better across a period of time – sometimes irregularly, sometimes in cycles and sometimes in response to external events (such as changes in the weather, activity levels and external stressors).  Your friend may not be able to make plans far in advance, or may have to cancel at the last minute.  They probably feel as bad about it as you do for running out of spoons!

Don’t forget your friend’s needs when planning events – do they have difficulty with stairs that might prevent them from joining you somewhere?  Are they unable to use public transport alone?  Are noisy or bright environments intolerable to them?

Whether you know them or not, it is inappropriate to question someone aggressively about the details of their disabilities or demand they explain why they might seem fine one day and very ill not long afterwards.  Phrases such as, “What is wrong with you?” should be avoided!  However, disabilities can be very isolating – so your friend may want to reach out and talk to you about it.  It is best to let them do so at their own pace and reveal only what they are ready to.

Your friend may also feel a range of emotions in connection with their disability – guilt about not being able to socialise as much, fear for the future, anger over being ill at all.  Conversely, achieving something (even a small thing) can be a joyful event and they may wish to share this with you as well.

Disability affects everyone differently – the person best placed to tell you about their disability is the person in question, if they want to.  Comparisons with others aren’t necessarily helpful, as everyone’s body and circumstances are different.


So where can you learn more?

Here are a few websites with useful information:

Invisible Disabilities List and Information from Disabled World

People with invisible disabilities fight for understanding article from NPR

How do you define invisible disability? by The Invisible Disabilities Association